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What is advocacy?

Advocacy is when you stand up for what someone else wants, needs and deserves.

As the supporter of a person with disabilities, you might:

  • Draw attention to injustices they face.
  • Help them get past barriers in their way.
  • Help them achieve their goals. 

However, you can only truly stand up for someone else if you understand them. The person you support might have different goals than you do.

It is vital that people with disabilities:

  • Are in charge of their own lives as much as possible.
  • Get to make choices based on what they like and don't like.
  • Have a say about what is important to them.
  • Get the help they need and want.

Be as curious as you can about the needs of the person you support. What do they want? What matters to them? You can make suggestions, but asking and listening should be your first steps.

Self-advocacy groups are one way to support someone to speak up for themselves. You can share the Disability advocacy Network Australia website's Find and Advocate section (external link).

Sometimes you might need a disability advocacy service. You can learn more about these on the Disability Advocacy Network Australia website (external link).

Another helpful resource is the Carer Gateway website (external link).

When you help improve the situation of the person you support by taking action on their terms, you can make a positive difference in their life and yours.

When is advocacy needed?

You might need to take action if the person you support:

  • Misses out on an experience unnecessarily.
  • Struggles to cope in a situation where they could thrive with the proper support.
  • Makes no progress towards their goals.
  • Is treated unfairly because of their disability, gender or sexual identity.
  • Is often frustrated and upset in a specific context, like at school or work.
  • Has pain or an ongoing medical problem.
  • Is confused about medical advice.
  • Shows signs that they may have experienced violence or abuse. You can learn more about this in the Neve section on Violence and abuse (internal link). 

Try to stay calm and do your research

If you become aware that the person you support has been treated unfairly, it's natural to feel:

  • Protective
  • Frustrated
  • Angry

However, advocacy is usually most effective when the advocate stays calm. Find a way to vent your feelings before you approach anyone about solving the problem.

 To be an effective advocate:

  • Understand the issue by talking to the person you support and researching.
  • Know the rights of the person you support. For example, if the issue is with an organisation, workplace or school, look online for relevant policies, like an organisation's policy on inclusion.
  • Consider the needs, interests and priorities of the person you support and your own sense of what needs to change.
  • Know who to approach about doing things differently. For example, it could be a manager, teacher, principal, activity coordinator, etc. Direct your advocacy towards someone who has the power to bring change.
  • Brainstorm solutions and identify one or two that you could do. Involve the person you support and anyone else with relevant advice, like a health practitioner or support worker.
  • Prepare. If you're talking in person or over the phone, have a list of questions and points you want to make.
  • Be positive and cooperative rather than leading with a complaint. If you begin a conversation in anger and frustration, the person you're speaking with might respond angrily, too. It reduces your chance of getting a good outcome. People are more likely to work together when a conversation is calm and respectful. If you're struggling to keep your cool, it may be a good idea to take a break, reschedule the meeting or write an email or letter instead.
  • Find ways to look after yourself as you go through the process. To do this, you might need to practice self-care.
  • Find peer support. Likely, others have had similar experiences supporting someone with a similar disability. Seek out their insights and support.
  • Get help from a professional. Counsellors and therapists can offer practical advice as well as empathy and encouragement.

Help the person you support take action

Before you spring to action, ask yourself whether you're the best person to tackle the problem. Could the person you support do the job instead?

To help prepare the person you support to stand up for themselves:

  • Support their independence, like giving them a chance to do things for themselves.
  • Respect what the person you support says about their own needs, wants and interests.
  • Build their confidence by giving them opportunities to make changes. For example, you could change the way you do something because that's what they prefer.
  • Help them research and prepare so that they can stand up for themselves.
  • Step in as needed to offer additional support, like going to a meeting as a support person.

1800 RESPECT

If you experience violence or abuse you can contact 1800 RESPECT for support and counselling.
Call 1800 737 732 or go to the 1800 RESPECT website to chat with someone online (external link).

‍To contact 1800RESPECT via SMS, text ‘HELLO’ or any greeting to 0458 737 732 to start the conversation.

Thriving: a guide for families with disability

This section of the website shares information to help families with disabilities live well. It talks about sex education and health. It describes how to support people with disabilities to make their own decisions without taking over. It offers help for family members, friends, and supporters of women, girls and gender diverse people with disabilities.

Find out more

Disability and discrimination

Discrimination is treating someone unfairly. It is illegal to discriminate against someone because they have a disability. Yet, many people in our community say they experience discrimination. If you've been left out or faced unfairness or disrespect, there are ways to take action.

Find out more

Resources.

May 4, 2024

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Participate Australia

Making Money Easy

A tool to support children, teens and adults with mild to moderate intellectual disability to learn basic counting and money handling skills.

Check resource

May 7, 2024

|

Disability Advocacy Network Australia

Find an Advocate

Tools and information to help you find advocacy services in your state or territory.

Check resource

May 4, 2024

|

Disability Australia Hub

Self-advocacy

Self-advocacy is when someone with disability speaks up and represents themselves. This guide shows you how.

Check resource

May 7, 2024

|

Touching Base

Booklets For People With Disability

Resources and information for people with disability about seeing a sex worker.

Check resource

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Speaking up for the person I support

Advocating for people with disabilities means looking out for their needs, rights and interests. It involves speaking up, solving problems and supporting helpful actions. It's about promoting their independence as much as you can. Here, we explain how to stand up for the person you support.

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